NF? What NF?

A couple weeks ago, I talked a bit about the NF Symposium I attended a few weekends ago and how I was struck by the conflicting agendas of the program participants. That was the cerebral side of things. In this post, I’ll be talking about the emotional aspects.

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Healthcare today – Quantity over Quality?

Now you may have noticed that despite having threatened to do so when I first started this blog, my forays into the discussion of politics have been fairly minimal. There are a number of reasons for this: 1) I have a number of friends from various stages in my life who *gasp* aren’t liberals. Shocking, I know. And while I may disagree (often strongly, and occasionally vociferously) with their beliefs on any number of topics, I respect that their experiences and priorities/values have led them to different conclusions than mine have led me. Besides to be perfectly honest (because, you know, apparently I wasn’t being honest before), I find as I get older that I’m just not interested in getting into fights – or even loud disagreements – with people anymore. I’m not going to change your mind. You aren’t going to change mine. And frankly, my memory is crap so I usually forget all the great statistics I’ve read that back up my position. So there.

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In Memoriam

Today is the three-year anniversary of Baby Girl, and I couldn’t let the day go by without remembering her. I think I said what I wanted to say best here, so I won’t repeat myself, but I just wanted Baby Girl to know that we’re thinking of her. We love you.

When it rains…

So I saw my rheumatologist two weeks ago. A few of you have wondered why some of my posts a have been tagged “lupus” despite not mentioning lupus once. Over the past three years, I’ve been going to the rheumatologist to check up on my APS, but also because of what they categorized “lupus-like syndrome.” Continue reading

Our Story: Baby Girl – Epilogue

I lied. I said it was a four-part series, but it turns out I have one more post to write. I had planned to append this to the fourth post, but it seemed out of place, so I’m giving it a short post all its own.

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Our Story: Baby Girl – Part 4

This is part four in a four-plus-part series on Baby Girl. To start at the beginning, click here. This one has the silver lining – I promise.

In the 1950s, Edward R. Murrow hosted a radio series entitled, “This I Believe,” a series of essays by famous, infamous and common people about the “guiding principles by which they lived their life.” In 2004, the series was revived, and from 2005-2009, essays were regularly aired on National Public Radio. While they are no longer aired on NPR, essays are still accepted and broadcast on The Bob Edwards Show and in podcasts.

I’ve always been fascinated by the This I Believe series, in the same way that I love the StoryCorps series that still runs on NPR. But until this event, I didn’t feel I had a driving event that compelled me to encapsulate any of my beliefs.

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Our Story: Baby Girl – Part 2

This is the second of a multi-part series. To read the first part, click here.

At 22 weeks pregnant (that’s the fifth month for those of you who are math-impaired), we were faced with a decision: Voluntarily and consciously end what was nearly certainly a non-viable pregnancy, or let the pregnancy “take its course.” There are significant ramifications to both options that I think aren’t adequately conveyed by that previous statement. Continue reading