In my last post, I spoke a little about how I’ve become more comfortable in my own skin – about who I’ve become as a person – then I think I’ve been in a while. But every so often, you get a glimpse of how others might see you too. Sometimes that’s an amazing view. And sometimes it makes you realize that you still have quite a lot of work to do. In less than 24 hours, I got both.
Of the 200+ articles I found on the web, my trusty Google News search suggests that only eight actually named NF as the cause of the tumor. 8. Out of more than 220. The rest merely referred to a “rare genetic disorder.” What’s more concerning is this: the CEO of the hospital where the operation took place told CNN that it was the same disease as that of “The Elephant Man.” Except the latest research suggests that Joseph Merrick, popularly known as “The Elephant Man,” is suspected of having Proteus Syndrome – a completely unrelated disease. If the medical community doesn’t even understand NF, and the press doesn’t report on it when provided an opportunity to educate, it’s no wonder that so few people have ever heard of the condition.
One of the many things I like about living in Boston is that there’s a relative shortage of natural disasters – though you wouldn’t know it if you watched our local meteorologists. My childhood state of California was like that too – there was always the possibility of earthquake or fire, but I never worried about it the way other parts of the country worried about their disasters. I guess it’s a question of what you’re used to.
Okay, I admit it. I’m a sucker for a really good Hallmark card. I’m easily influenced by a certain type of sappy, thoughtful and pseudo-thoughtful quotes/sayings. Case in point, I really love the quote attributed to Ralph Waldo Emerson about success. You know, this one:
This Mother’s Day, I leave with you an excerpt from Tina Fey’s new memoir, “Bossypants.” I saw it on Facebook from a friend, and heard this story on NPR (Tina Fey Reveals All (And Then Some) In ‘Bossypants’ : NPR.)
I think Ms. Fey says all there needs to be said.
Tina Fey’s Prayer for her daughterFirst, Lord: No tattoos. May neither Chinese symbol for truth nor Winnie-the-Pooh holding the FSU logo stain her tender haunches.
So I was catching up with a friend of mine on Facebook, when she asked a question that made me realize that she and I hadn’t chatted in a while. So as I was catching her up, I realized that my life must sound a little Job-ian.